CURRENT AFFAIRS

Detailed explanation-1: -Financial support upto Rs. 50 lakhs is provided to the patients suffering from any category of the rare diseases and getting treatment in any of the Centre of Excellence (CoE) identified under NPRD-2021.

Detailed explanation-2: -The policy aims to strengthen tertiary health care facilities for prevention and treatment of rare diseases through designating eight health facilities as ‘Centres of Excellence’ and these will also be provided one-time financial support of up to Rs. 5 crore for upgradation of diagnostics facilities.

Detailed explanation-3: -Provision for financial support of up to Rs. 50 lakhs to the patients suffering from any category of the Rare Diseases and for treatment in any of the CoEs, mentioned in NPRD-2021.

Detailed explanation-4: -Treatment for some of these diseases may vary from ₹10 Lakhs to more than ₹1 crore per year, with drug dose and cost increasing with age.

Detailed explanation-5: -Rs 50 lakh grant will cover all Rare Diseases This was done by amending Paragraph 10 (i) of the National Policy for Rare Diseases (NPRD), 2021 which provided ‘financial support up to Rs. 20 lakh under the Umbrella Scheme of Rashtriya Arogya Nidhi (RAN)’.